This file collects information about the ethics of data science as well as about data science aspects of ethics, especially with respect to ethical review workflows.
- SciDataCon 2016 sessions:
- Firing of veteran NIH scientist prompts protests over publication ban
- Many institutions issue guidance on ethical matters and the processes set in place to handle them. Some examples:
- Revised CIOMS International Ethical Guidelines for Health-Related Research Involving Humans
- Ethical Considerations for Zika Virus Human Challenge Trials: Report and Recommendations (PDF)
- .. is scarce, with a few exceptions, e.g.
- Office for Human Research Protections (OHRP) Database for Registered IORGs & IRBs, Approved FWAs, and Documents Received in Last 60 Days
- Ethics panel blocks proposed Zika vaccine research
- The Retraction database currently has 397 hits when searching for "ethical" under "Reason(s) for Retraction" (see this ticket)
- Making ethics data FAIR (PIDapalooza 2016 session)
- GitHub and GitLab censored research dataset
- Swiss researchers travel to China to conduct pioneering experiment
- Federal Policy for the Protection of Human Subjects
- Data Carpentry have published their IRB proposal and determination letter.
- Make open data sharing a no-brainer for ethics committees
- You Can’t Opt Out Of Sharing Your Data, Even If You Didn’t Opt In
- (ethical) Compliance research at the University of Virginia
- broken link to
If you have a question regarding which IRB you should submit to please see this document.
- broken link to
- Code of conduct for rescuers involved in the Tham Luang cave rescue operation in Thailand
- Comparison of surgeons (whose work affects individuals, one at a time) with that of data scientists (who may well affect large numbers of individuals in one swath)
- I was raised as a Native American. Then a DNA test rocked my identity (Sequoya Yiaueki) — Finding out my father lied about his heritage has forced me to radically question who I am (archived)
- Fake fingerprints can imitate real ones in biometric systems – research (archived)
- Hacker ethics by Chaos Computer Club
- Global Technology Collective
- Good Data Practices for Indigenous Data Sovereignty
- Sören Auer on data sovereignty (Datenhoheit) in the German parliament (Bundestag)
- GIDA - The Global Indigenous Data Alliance — highlights issues of data sovereignty
- International Ethical Guidelines for Health-related Research Involving Humans
- Guidance For Managing Ethical Issues In Infectious Disease Outbreaks
- Recovery Toolkit - Supporting countries to achieve health service resilience: A library of tools & resources available during the recoveryperiod of a public health emergency
- WHO consultation on Data and Results Sharing During Public Health Emergencies - Background Briefing
- Data Sharing in Public Health Emergencies: Anthropological and Historical PerspectivesonData Sharing during the 2014-2016 Ebola Epidemic and the 2016 Yellow Fever Epidemic
- UVA Researchers: Does My Smartphone Know I Am Sick?
- Spiders and crawlers and scrapers, oh my! The law and ethics of researchers violating terms of service
- COVID-19 case-level data sharing in Singapore
- Despite its commitment to ‘trustworthy’ #AI, the EU is bankrolling AI projects that are questionable